I wanted to keep this link for future reference as well. It is a good summary of current understanding in the world of anemia which is a sister disease to GH.
3 Comments
3/20/2013 08:52:07 am
My blood tests recently came back showing me to be anemic. Weird. Since being HH diagnosed in the late 90s I have never been anemic. Postponed phlebotomy until September.
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Rick
3/21/2013 02:46:48 am
Hi Bob. I understand that anemia is technically when we have a SF under 30 or a hematocrit under 40 for men or under 36 for women. The CDC says we should keep our SF between 25 and 50 for life, so many of us may be anemic on that count - but not truly having anemic symptoms. I need to read more on hematocrit to comment, but mine has always been in the 40s since after I went into maintenance.
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Rick
3/21/2013 06:43:44 am
One other thing I bumped into. Some doctors diagnose anemia based on Serum Iron - the amount of iron in the blood v. Serum Ferritin - the amount of iron in the body. This can be very dangerous for us because we can have low Serum Iron even when we have HH. This is a case study that caused a huge stir in the medical community helping to make more doctors aware of us. http://www.nejm.org/doi/full/10.1056/NEJM199807233390413
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AuthorMy name is Rick and the SNP which I refer to is a C282Y homozygous variant in my HFE gene. This site is devoted to making that sentence sound like simple English. Archives
July 2015
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