List of links to other websites
Best Article Yet. Very good place to start. From The Atlantic magazine.
The Iron in Our Blood That Keeps and Kills Us
Uptodate claims to be used by ~90% of academic medical centers "to process to synthesize the most recent medical information into trusted, evidence-based recommendations".
http://www.uptodate.com/contents/hemochromatosis-hereditary-iron-overload-beyond-the-basics?source=related_link
At the time of providing this link, it showed: Literature review current through: Feb 2013. | This topic last updated: Sep 13, 2011. Its content does seem very current, but does not yet recognize the health issues beyond the C282Y variance. Also they are still suggesting that symptoms do not typically develop until 40 and that they develop later in women. Recent studies and the empirical evidence of so many young people of both genders actually being found with symptoms will eventually force a change on these points. Hopefully this will be one of the first official places we see that change.
The American Association for the Study of Liver Diseases (pdf) http://www.aasld.org/practiceguidelines/Documents/Bookmarked Practice Guidelines/Hemochromatosis 2011.pdf
This guideline has been approved by the American Association for the Study of Liver Diseases (AASLD) and represents the position of the association. Current up to 2011.
These last two links both seem to be heavily influenced by Bruce Raymond Bacon, M.D., whose very impressive CV is here.
International BioIron Societyhttp://bioiron.org/resources/links.aspx
This is a closed organization for those doctors and scientists that are working to make us healthy. There is not much publicly available here other than a brilliant list of links to other websites and a list of journals which cover issues related to iron health.
The Haemochromatosis Society (England)
http://www.haemochromatosis.org.uk/
The Haemochromatosis Society was established in 1990 in order to help, support and provide information for those affected by Haemochromatosis (Iron Overload Disorder). This site uses medical advisors and science advisors to provide very solid and current information though the official stance on the disease by many of these doctors can be found at the British Committee for Standards in Haematology Guidelines on diagnosis and therapy British Society for Haematology Genetic Haemochromatosis (pdf). This document is from 2000, but contains a massive amount of in depth information which may be of interest to the advanced reader.
The Canadian Hemochromatosis Society (Canada)
http://www.toomuchiron.ca/
Founded by Marie Warder in 1980 this site has similar information to The Haemochromatosis Society. They have a nice newsletter and links to the Canadian versions of guidelines for the diagnosis and treatment of GH from the The BC Government's Ministry of Health. This was published in 2006 and is very similar to the versions from the US and UK.
USA:
http://www.cdc.gov/ncbddd/hemochromatosis/index.html
http://www.americanhs.org/
http://www.ironoverload.org/
http://www.irondisorders.org/forms/
http://www.hemochromatosis.org/
http://www.celticcurse.com
http://www.78thfrasers.us/my_story.htm
http://www.genome.gov/10001214
http://www.medifocus.com/2009/landing.php?gid=GS020&a=a&assoc=linkshare
http://my.clevelandclinic.org/disorders/hemochromatosis/hic_hemochromatosis.aspx
https://www.23andme.com/health/Hemochromatosis/
Facebook Groups:
Open (Meaning others can see your posts on your timeline)
https://www.facebook.com/groups/haemochromatosis/ (England)
Closed (Your posts here will be private within the group's members)
https://www.facebook.com/groups/2261354733/
https://www.facebook.com/groups/3079875172/
https://www.facebook.com/groups/hhsupportnetwork/ (England)
https://www.facebook.com/groups/Hemochromatosis/ (I am an admin on this page)
The Iron in Our Blood That Keeps and Kills Us
Uptodate claims to be used by ~90% of academic medical centers "to process to synthesize the most recent medical information into trusted, evidence-based recommendations".
http://www.uptodate.com/contents/hemochromatosis-hereditary-iron-overload-beyond-the-basics?source=related_link
At the time of providing this link, it showed: Literature review current through: Feb 2013. | This topic last updated: Sep 13, 2011. Its content does seem very current, but does not yet recognize the health issues beyond the C282Y variance. Also they are still suggesting that symptoms do not typically develop until 40 and that they develop later in women. Recent studies and the empirical evidence of so many young people of both genders actually being found with symptoms will eventually force a change on these points. Hopefully this will be one of the first official places we see that change.
The American Association for the Study of Liver Diseases (pdf) http://www.aasld.org/practiceguidelines/Documents/Bookmarked Practice Guidelines/Hemochromatosis 2011.pdf
This guideline has been approved by the American Association for the Study of Liver Diseases (AASLD) and represents the position of the association. Current up to 2011.
These last two links both seem to be heavily influenced by Bruce Raymond Bacon, M.D., whose very impressive CV is here.
International BioIron Societyhttp://bioiron.org/resources/links.aspx
This is a closed organization for those doctors and scientists that are working to make us healthy. There is not much publicly available here other than a brilliant list of links to other websites and a list of journals which cover issues related to iron health.
The Haemochromatosis Society (England)
http://www.haemochromatosis.org.uk/
The Haemochromatosis Society was established in 1990 in order to help, support and provide information for those affected by Haemochromatosis (Iron Overload Disorder). This site uses medical advisors and science advisors to provide very solid and current information though the official stance on the disease by many of these doctors can be found at the British Committee for Standards in Haematology Guidelines on diagnosis and therapy British Society for Haematology Genetic Haemochromatosis (pdf). This document is from 2000, but contains a massive amount of in depth information which may be of interest to the advanced reader.
The Canadian Hemochromatosis Society (Canada)
http://www.toomuchiron.ca/
Founded by Marie Warder in 1980 this site has similar information to The Haemochromatosis Society. They have a nice newsletter and links to the Canadian versions of guidelines for the diagnosis and treatment of GH from the The BC Government's Ministry of Health. This was published in 2006 and is very similar to the versions from the US and UK.
USA:
http://www.cdc.gov/ncbddd/hemochromatosis/index.html
http://www.americanhs.org/
http://www.ironoverload.org/
http://www.irondisorders.org/forms/
http://www.hemochromatosis.org/
http://www.celticcurse.com
http://www.78thfrasers.us/my_story.htm
http://www.genome.gov/10001214
http://www.medifocus.com/2009/landing.php?gid=GS020&a=a&assoc=linkshare
http://my.clevelandclinic.org/disorders/hemochromatosis/hic_hemochromatosis.aspx
https://www.23andme.com/health/Hemochromatosis/
Facebook Groups:
Open (Meaning others can see your posts on your timeline)
https://www.facebook.com/groups/haemochromatosis/ (England)
Closed (Your posts here will be private within the group's members)
https://www.facebook.com/groups/2261354733/
https://www.facebook.com/groups/3079875172/
https://www.facebook.com/groups/hhsupportnetwork/ (England)
https://www.facebook.com/groups/Hemochromatosis/ (I am an admin on this page)